Urgent Need: Join the Bone Marrow Donor Registry

Kris Miner of Leawood, Kansas, has a rare form of cancer, Cutaneous T-Cell Lymphoma (CTCL), which has transformed into Stage 4B Large Cell Lymphoma. She is one of only 10 people in the world at any one time to have this type of cancer. Her PET scan revealed tumors on her skin, lungs and lymph nodes.

The best hope Kris has for recovery is a bone marrow transplant. Currently, of the more than 17 million people registered as bone marrow donors, not one provides a close enough DNA match for Kris.

WE NEED YOUR HELP! Please join the Bone Marrow Donor Registry today. Kris urgently needs to find a matching bone marrow donor in the next 7-9 weeks. We are specifically seeking individuals with German or Dutch heritage to join the registry as a potential match for Kris, though everyone between the ages of 18 and 60 is encouraged to join.

For more information, see the Bone Marrow Donation page.

MESSAGE FROM KRIS: Ken and I are grateful for the outpouring of support and prayers from our family and friends. As you know, I’ve been diagnosed with transformed cutaneous t-cell lymphoma and I’ve already started my treatment. Your encouraging messages and positive thoughts mean a great deal to me and give me strength for the days and weeks ahead.

Our purpose in starting this blog is to keep you up to speed on my progress at all times. I also hope to reassure you that I’m in the best of hands and am doing just fine. Many of you have called to express your concern and offer assistance, which Ken and I appreciate tremendously. We would love to speak with each of you individually, but there’s never enough time in the day to share as much information as we’d like. So we hope you will rely on this blog as your primary source of information, and we’ll connect with you individually as much as we can.

On the Updates page of the blog, we’ll post regular news on my progress toward recovery. For those of you looking for more detailed information, I invite you to visit the following pages:

For those looking to help, please visit the Bone Marrow Donation page to register to learn more about becoming a bone marrow donor or making a financial contribution to the National Bone Marrow Donor Program.

Please note that all of these pages will be updated with details as soon as they become available. We are at a very early stage in the process right now, and much is unknown. As my diagnosis is solidified and my medical team and treatment plan take shape, I’ll update the site so you have access to the latest information.

Again, thank you for your support. Ken and I ask for your continued prayers over the coming weeks as we set out on this journey toward recovery. We also invite you to share your comments here on the blog so our kids can read them and be encouraged.

197 Responses to “Home”


  1. 1 Sarah June 13, 2012 at 3:13 pm

    Kris,
    Your friend, Matt, sent me some information on this journey that you’re going through and how I might be able to help. I’m of Irish decent, but I registered to donate and my kit is on its way, hopefully I’ll be a match! Please know that I am praying for you and I have faith that you will be able to beat this.

    Sarah

    • 2 David Grant June 18, 2012 at 9:06 pm

      The most recent edition of “the Leaven” has an article on my wife’s four cousins who are also in need of bone marrow transplants. The article is on page six and lists several upcoming opportunities to get swabbed at local churches in the Kansas City area. I encourage everyone to find a date and location that works best for them and get tested. It only takes a few minutes and the process is very simple and painless. Just a simple cheek swab. It really can save a life!!

      http://www.theleaven.com/past_issues/_pdf/v33/Leaven%2006-15-12.pdf

  2. 3 Erik Miner June 13, 2012 at 4:24 pm

    Kris’ friends at LionShare have organized a “Swab Party”
    June 21st 3-7 at
    Lionshare:
    7830 Barton
    Lenexa , KS 66214

    http://marrow.org/Pages/DonorDriveSearch.aspx?key=070-4-14324

  3. 6 Douglas Stockstad June 13, 2012 at 11:30 pm

    Just signed up on the donor site. My family is from Iowa, ND, SD, NE I hope I am a match! Kit is on its way. I wish there was a faster way for me to find out for you!
    Doug Stockstad

  4. 9 Elizabeth McBride June 13, 2012 at 11:32 pm

    Saw your story on channel 9 tonight. Moved me so much that I wrote a post on my Facebook page with a link to this website and asked all of my friends to sign up on the registry. Don’t know you but hoping that somehow God will hear all of these prayers for you. God Bless,
    Elizabeth McBride

  5. 11 jaime June 14, 2012 at 1:07 am

    I plan on going to the swab event. I live locally but was born in Minnesota. I do hope I can donate being overweight? I did register also ~ fingers crossed. God bless.

  6. 13 Kathleen Stander June 14, 2012 at 3:56 am

    Just watched your story on KMBC TV 9. My husband’s family is German; the ancestors left Germany in 1855 to homestead in Nebraska. I will tell each of my (grown) children about the event scheduled later this month so they can get swabbed. I am praying for you and your family, Kris. May God bless you and hold you in His arms; may He bring a lifesaving match to you. {{{{{Hugs}}}}}

  7. 14 Sonya Haas June 14, 2012 at 5:00 am

    Hi Kris! I too saw you and Ken on Channel 9 news. We worked together back in our Olsten days:) You are a beautiful person and I have always had a lot of respect for you. I pray for you and your family during this difficult time. Not sure I would be potential donor, as I am actually suppose to hear tomorrow if my breast biopsys are benign or positive.
    Would love to help if I am able. I will most certainly keep the prayer chain going! Your friend, Sonya

  8. 15 Nancy June 14, 2012 at 11:36 am

    Dear Kris,

    Just to let you know I have donated to Be the Match Foundation. My age prevents me from registering.

    You are in my thoughts and prayers. Your reaching out is already adding names to the donor list and I am confident a match will be found soon.

    God Bless you and your family.

    Nancy, Kansas City Kansas

  9. 16 Andre' June 14, 2012 at 12:06 pm

    Kris:

    I just signed up finally. I’m kind of a mutt, so maybe i’ll match something.

  10. 18 Chris Mesko June 14, 2012 at 1:21 pm

    Kris
    Matt just texted me about your condition. You are in my prayers. For all the times I have seen Ben at my house, I never would have imagined this was going on at home. What a testament to your courage and strength. I wish you luck. I plan to log onto the donor site and get my kit.
    God bless you and your family.
    Chris

  11. 20 Jean Dunn June 14, 2012 at 5:26 pm

    Kris, we are all pulling for you. I am not eligible to be a donor, but made a donation to the registry.

  12. 22 Tracey Vaughn June 15, 2012 at 3:32 am

    I play woman’s roller derby in Cape Girardeau, Missouri and I was wondering if you knew that there is a team in Kansas City. They are called the Kansas City Roller Warriors. Most roller derby teams are non profit organizations that are active in the community (benefits, charity work ect) you should look into contacting them about joining the registry or helping get the word out. I joined the registry in April on this year but I see that you have already been through all potential donors in the registry. If you would like to send me some information I could pass it along to my team in Cape and see if I could get some of the girls to register.

  13. 24 marciayouker June 15, 2012 at 2:51 pm

    Kris-

    If there is one thing that is clearly obvious – this cancer hasn’t gotten to your strength or your beauty. We saw you on the news and have been following your blog. Your pretty smile still puts people at ease and your strength is so motivating. Please know how much you are in my thoughts and prayers as we cannot get you and your family off our minds. Your support system is larger than life and a match will come through for you Kris – you are and have always been a ROCKSTAR.

    Sending hugs your way,
    Marcia Youker

  14. 25 marciayouker June 15, 2012 at 3:00 pm

    Kris-

    If there is one thing that is clearly obvious – this cancer hasn’t gotten to your strength or your beauty. We saw you on the news and have been following your blog. Your pretty smile still puts people at ease and your strength is so motivating. Please know how much you are in my thoughts and prayers as we cannot get you and your family off our minds. Your support system is larger than life and a match will come through for you Kris – you are a ROCKSTAR.

    Sending hugs your way,
    Marcia Youker

  15. 27 Amber Steinberg Moeller June 15, 2012 at 3:09 pm

    Kris, I don’t know if you remember me from high school. (Amber Steinberg from Manson) I found out about your situation on Nancy’s facebook page. I have considered signing on to be a marrow donor for years. I ordered my kit yesterday so thank you for the “incentive” to do what I have always known I should. I have been an RN for 24 years and see the desperate need. I am praying with all my heart for your progress and any others I could possibly help. I know it’s such a long shot but pray I could help YOU.
    Sincerely,
    Amber

  16. 29 Emery Sunderland June 16, 2012 at 2:04 am

    Kris, I have been on the registry for about a year and a half now after my father went through the bone marrow transplant process. I have posted your story and the link to your blogs multiple times on my facebook page. I think about you and your family every day. You have amazing strength and you are truly an inspiration.

  17. 31 Tedi Posladek June 16, 2012 at 3:59 am

    Kris & Ken…just heard about what you are going through. I’m helping spread the word and will try to get registered when I get back into town. Thinking of you and your family and hoping the everyone helps spread hope for you and others quickly through facebook and twitter. You courage inspires others. Tedi

  18. 33 Sheila Johnson June 17, 2012 at 4:47 am

    Hey,
    When Nancy and I were young, we’re those your Crocodile Rock and Captain & Tenille 45s we used to blast in the basement? If so, it was absolutely 100% Nancy’s idea…every time. (I really needed to get that off my chest.)

  19. 34 Jacqueline Gidel Dawson June 19, 2012 at 2:10 pm

    Dear Kris,

    My thoughts are with you now and always. I am so sorry that you are going through this and pray that it will all be behind you soon.

    I have so many terrific memories of our times together. I hope one of our visits back to R.C. will coincide so we may catch up in person.

    I will sign up to be screened and will share the information to have others do the same.
    Be well dear friend… You have MANY rooting for you!

    Love and Hugs,
    Jacque Gidel Dawson

  20. 36 Bart Janssen June 19, 2012 at 3:05 pm

    Kris and Ken, I have just reached out to 4 Dutch bodies that could help raise awareness in The Netherlands for your donor cause. I hope that I will get some positive reactions in the coming days. Keep you posted.

    Bart

  21. 38 Jeri Bartunek June 19, 2012 at 4:06 pm

    Dear Kris,
    My thoughts and prayers are with you and your family. I tried to sign up to be a doner for you but will have to support you in other ways. Please let me know what I can do. I clean, drive, do laundry, and cheer! What ever you need, where and when you need it!

  22. 40 John Woolcott June 21, 2012 at 11:56 am

    Kris-
    Courtney and I just heard about this yesterday at HyV. You are in all of our prayers and we will all be “swabbing” today. With all the German blood on Lisa’s side, and my apparent Irish traits towards the love of a pint who knows. Love you neighbor, and don’t hesitate to reach out.
    John, Lisa, Connor and Courtney

  23. 41 Mark Hauber June 21, 2012 at 4:51 pm

    Hi Kris,

    I just saw the post by rcook101 & your link from GoPowerCat.com.

    My prayers, along with other fellow Wildcats are with you & your family.

    I have been on the registry for over 15 years, but have never “won the lottery”, so here is hope I can win it for YOU! GodSpeed!

    Mark Hauber

  24. 43 rocksinthewasher June 21, 2012 at 7:25 pm

    Just signed up for a kit – come from Russian/German Mennonite background…one never knows. 🙂 I wish you peace, healing and the miracle only God can bestow!

  25. 44 Stephanie Mountain June 22, 2012 at 2:02 am

    Kris,

    It was so great to see you today! I hope I am your match! Your crew was so amazing today… organized and fun… I count myself lucky to have been a part. : )

    My best to you both,

    ~Stephanie J. Mountain

  26. 45 joyce moss June 22, 2012 at 10:31 pm

    I’m from german heritage and sent mine bone marrow test in about 10 days ago or so!

    Our thoughts and prayers are with you and your family.

    Let us know when you need assistance.

  27. 47 Dee Quick June 23, 2012 at 5:43 pm

    Kris, Ken, and Family: I just heard of your current medical condition two days ago. My heart goes out to all of you. I have been struggling for the appropriate words.. What I can say: I will be tested. I am of German descent. I am praying to be a match. I am daily taking your cause to the Throne of Grace. And I have alerted the 11:00 Bible Study Group and Prayer Chain to your needs. They are a mighty band of faithful prayer warriors. I will continue to spread the word whenever and wherever I can…relentlessly.

    We believe in and worship the one and only true God who loves unimaginable odds. This is where His strength, power, and glory is truly revealed! He does His best work here! The scripture that keeps coming to my mind for you is: Jeremiah 29:11-14a. “For I know the plans I have for you, declares the Lord, plans to prosper you and not to harm you, plans to give you hope and a future. Then you will call upon Me and come and pray to Me, and I will listen to you. You will seek me and find Me when you seek Me with all your heart. I will be found by you, declares the Lord and will bring you back from captivity.” and Proverbs 3:5-6: “Trust in the Lord with all your heart and lean not on your own understanding; in all your ways acknowledge Him, and He will make your paths straight.”

    Lastly, I will remain in your corner; interceding before our Great God on your behalf for a donor to be found. From the words of a song named “Held” by Natalie Grant; this is what it means to be held. Kris, YOU ARE HELD!!

    Dee Quick

  28. 49 Chadwick Callenius June 24, 2012 at 10:06 pm

    Dear Kris, I just recieved my swabs in the mail yesterday and have done the process and ready to put it in the mail tomorrow. My wife Stacy should be getting her’s in the next few days also. We are here to back you up. As a family we all stick together through thick and thin.

    Love your cousin,
    Chadwick

  29. 52 Amber Steinberg Moeller June 26, 2012 at 1:35 am

    Kris, I have returned my kit in the mail, and am praying for you and your family daily!
    Amber

  30. 54 Chadwick Callenius June 28, 2012 at 1:55 pm

    Kris, Stacy and Myself have been spreading the word up here. But I was wondering if you have any Team Kris shirts left? If you do can we get a couple of them?

  31. 57 Erik Miner June 28, 2012 at 2:57 pm

    Friends of Kris: Please share this video with your Church. Would your church consider showing it at a Service? Sending via to Church Members? http://www.youtube.com/watch?v=h5nFBXBNxdk&feature=youtu.be After watching the video, click on “more information” and there is a PDF that you can print to share the Team Kris story and Donor information.

  32. 58 Jacqueline Olsen June 28, 2012 at 4:26 pm

    Hi Kris, I saw the post on my Facebook, I am a memeber of the Dutch in America.com. I am half Dutch and half Amerian. I lived in Holland for 11 years and have lived in California for 30 years now. I am on the donor Registry and ofcourse would help if I can. my e-mail address is jolsen@mve-architects.com If you need my Donor info. I hope to hear from you…..

  33. 59 Robbert A. Lamaker June 28, 2012 at 7:10 pm

    Hi Kris, I read about your story on Facebook…Dutch in America. I was born in Holland to two Dutch parents but I now live in South Carolina. I registered on the donor site. All the best…

  34. 61 Sarah June 28, 2012 at 7:12 pm

    To Kris and her family–there are many people supporting you and hoping for the best. I have faith that you will find a donor, and your efforts are helping others just like Kris. You get closer and closer to finding a match with each individual that you inspire to join the registry! We are all praying for yall.

  35. 63 Bill and Shannon Condon June 29, 2012 at 4:35 am

    Kris,
    Shannon just joined the Donor Registry. I had already joined in the past. We hope one of us is a match. We also emailed everyone we could think of to join the registry. We are praying for you and your family. Please let us know how else we can help.

    Bill and Shannon Condon

  36. 65 Nethervoice June 29, 2012 at 3:06 pm

    Dear Kris:

    I too was born and raised in The Netherlands and I registered to be a donor this morning. I’m a U.S. citizen now, and I’ve posted an appeal to sign up for the registry on Facebook and Twitter.

    All we need is one match and we’ll find one for you.

    Hang in there!

    Paul Strikwerda

  37. 67 Martin Peggy Hildreth June 29, 2012 at 7:45 pm

    WONDERFUL NEWS Kris!! Everyone here in Rockwell City, Iowa are keeping you and your family in our prayers.

  38. 69 Catherine Thurman July 10, 2012 at 11:12 pm

    Kris,
    Your mom told us you really wanted to be with us today as we celebrated Al Blank’s life, but we know you need to take it easy on yourself as much as possible – you’ll need all your strength. As much as we wish you could have been with us and the rest of your family, we are glad you stayed put! Though we’ve been preoccupied with my dad’s illness, we’ve been keeping up on your fight. Clearly, your parents are extremely proud of you! May it help you to know we have a friend who went through a diagnosis of Lymphoma and the stem cell transplant process over a decade ago and she is quite well. Know that we are thinking of you and praying for you, cousin!
    Stephen and Cathy (Blank) Thurman

  39. 72 Bill Grant July 14, 2012 at 12:08 am

    Kris,

    Filling out the donor registry now, will get registered immediately. Thank goodness for Facebook, rarely am I on there I was just going through the remember whens in RC and found a picture posted by Scott Wendt of you and Nancy that said Help. I followed the trail to here, in the last week I have spoken to my brother and Joe Anderson and neither of them let me know, shame on them. I am here now and ready to help in way I can, my thoughts and prayers are with you. I know you will come through this like a champ, best wishes always.

    Bill Grant

  40. 74 Lisa Reed July 15, 2012 at 5:25 pm

    Hello Miners,
    I heard of your story from a friend at Trinity. My husband Denny also has CTCL which began transforming in October. He was treated with CHOEP then transfused with his own stem cells since we were unable to find a matching donor. I admire the way you have taken the bull by the horns to get this in front of as many people as possible. I KNOW what you are going through and will add you to my prayer list as well. If you desire to talk with someone who has very recently undergone the journey you now have my email and can send me a private message in order to share phone numbers. We too await a matched donor…the CTCL has already reappeared for Denny.

  41. 75 Kari McKenzie D'Amato July 20, 2012 at 7:57 pm

    Hello, Miner family!

    My husband and I both sent our swabs in and I’d absolutely love to be a match for you! I wonder how long it takes to process–it’s been about 4 weeks.

    I’m sure you never thought you’d be going through this–you are inspiring and brave. I truly admire your strength and determination. You are in my thoughts and prayers!!

    Kari McKenzie D’Amato (I grew up with Ken.)

  42. 76 Lisa Reed July 20, 2012 at 10:36 pm

    I am SO thankful the way the Miner family/team has gotten behind finding a match for Kris. In the process, many more people are signing up and maybe one of them will be a match for my husband (also in the Kansas City area) who has the same cancer and transformation that Kris has. I pray a match will be found for both of them!

    • 77 Jim O'Brien July 21, 2012 at 5:30 pm

      Lisa,
      As just one of the hundreds of memebers of Team Kris, I know I speak for all of the team when I say that all people facing the challenge of Kris, your husband, and so many others looking for “the match” are in our thoughts. We are all inspired by the courage displayed by Kris and her family, and we hope our efforts benefit many. Please know many people are out there supporting the warriors like Kris and your husband. Jim O’Brien

  43. 78 Michael k. Miner August 16, 2012 at 3:09 am

    Mic and deb here – we think about you all the time and love you very much – little Christopher says please get well soon – we miss you

  44. 80 Abby Henderson August 20, 2012 at 1:22 pm

    Kris–we are thinking about you today and everyday! Drove past your house this morning and can’t wait to see you back in the driveway with a bottle of bubbly toasting your brand new immune system! Praying for your engraftment to be a total success! Good mojo heading your way!

    Love, Abby

  45. 81 Rob Stitt August 21, 2012 at 4:07 am

    Good luck on your treatment, you’re in my thoughts and prayers.

  46. 82 Andrea Nelson Kuhn August 21, 2012 at 3:03 pm

    Hi Kris and team!
    I just donated to the Be the Match Registry as I cannot be a donor. I also encouraged FB friends to donate before Aug. 31st as the first $100,000.00 will be matched! Tell your Mom and Dad and Nancy “Hi” from me and I am thinking and praying hard for all of you and your family.
    Fond memories of good times babysitting back in RC,
    Andrea (Nelson) Kuhn

  47. 83 Roberta Cleveland August 23, 2012 at 8:59 pm

    Hi Kris,
    Very sorry to hear the struggles you are facing with your illness! You and your family will be in our thoughts and prayers!

    Wishing you God’s blessings and love in the months/years ahead!

    Fellow Trinity members,
    Roberta and Troy Cleveland

  48. 84 David Wells August 23, 2012 at 9:18 pm

    Hi Kris, Ken and family this is Dave, Sue, and family here, wanted you to know that you guys are in our thoughts and prayers. At Friday night home group, we lift you up in prayer fervently and pray for God’s Will. Hang in there, the journey continues. Love you guys. Dave

  49. 85 Ben A. Spalding August 23, 2012 at 10:05 pm

    Dear Kris and Family – you have been in my prayers so very often these last few weeks. I pray for strength and courage for all of you during this difficult time. May God’s peace and presence be with you!
    Ben A. Spalding

  50. 86 Kirsten Schalekamp August 24, 2012 at 2:00 am

    Kris,
    We are praying daily for you. My small group has had you on our list for quite sometime. Know that all your prayer warriors are here for you. We are thankful for this transplant and pray that God gives you the strength you need to fight this battle. He’s got a strong woman with an amazing family to work with. God’s blessings to you!


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