For the past 10 years, Kris has been fighting a form of cancer called Cutaneous T-Cell Lymphoma (CTCL). CTCL is a slow-progressing cancer that has a treatment protocol but no cure.  Most people with CTCL treat it for their entire lives with a normal life expectancy.

In very rare cases, CTCL will transform or mutate into another form of cancer. In Kris’s case, her CTCL has transformed into Stage 4B Large Cell Lymphoma. Her PET scan revealed that there are tumors on her skin, lungs and lymph nodes.

Large Cell Lymphoma is a very intrusive form of cancer that requires immediate and aggressive treatment. For Kris, there is only one known treatment: a stem cell and bone marrow transplant. (Details are outlined in on the Treatment Plan page.)

Out of 17 million people in the National Bone Marrow Registry, there is not currently a single match for Kris. So we really need your help and prayers. Please consider registering to be a bone marrow donor, and pray for a DNA match to be found in time for Kris’s transplant. (For more on becoming a donor, see the Bone Marrow Donation page.)


5 Responses to “Diagnosis”

  1. 1 Becky Boden June 11, 2012 at 3:39 pm

    Hi, Kris and family, My name is Becky Boden and my husband, Tom, has Cutaneous T-Cell Lymphoma as well. Needless to say, when we watched the news story on Channel 5, I was surprised to hear those words since it is so very rare. We would like to send you our best wishes and prayers AND everytime I think about you I will shoot up yet another prayer for a donor.

    I am very curious about your diagnosis and treatment plan during the time you have had this condition. It seems the medical folks have very little to offer us except “put this lotion on it and sit naked in the Sun”! LOL He is being treated by Dr. Casparian at the VA Medical Center in Leavenworth and I must give Dr. Casparian credit for diagnosing it in the first place. He has had symptoms since he was in Viet Nam and WE highly suspect Agent Orange as the cause even tho’ the VA refuses to recognize CTCL as such.

    I realize you are all very, very busy so I will give you our phone number in case you would be interested in talking with a kindred soul. Perhaps we can encourage each other along with a knowledge exchange. Our number is 816-901-6310. I am home most of the time and Tom gets home from work at 6:30 PM.

    Thanks for your time,
    Becky Boden


  2. 2 Maria June 11, 2012 at 4:35 pm

    We just held a bone marrow registration at St. Therese Catholic church in Parkville. We have a family that has 4 members needing BMT’s too. So, there were a LOT of new registrations this weekend. Not sure how long it takes them to process them, but more hope for a match for you as well. Prayers

  3. 3 Harold Elias June 21, 2012 at 11:57 pm

    I would encourage you to take a careful look at .
    Dr. Johanna Budwig of the BUDWIG CENTER, Malaga, Southern Spain has a free download Diet Guide that is really a very thorough Wellness Guide that focus on how to help the body fight cancer. Excellent resource. Highly recommended.

  4. 4 Jolene Rasty June 22, 2012 at 4:26 am

    Kris, Awesome response for more registered donors. That says a lot for you and your family and how much love they have for you. We’ve been registered for many years and must not be a match, but we are and will continue to PRAY, PRAY as you fight this.

  5. 5 Charline Cardwell August 11, 2012 at 1:31 am

    Hi Kris, it is Charline Cardwell, Ben’s second grade teacher. I wanted to say that all of you are in my thoughts and prayers. It is great families like yours that make teaching so rewarding. God bless you.

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